Small Wins, Big Impact: A Journey to Empower Children With Disabilities Through Design

I recently had the incredible honor of joining Elizabeth Bieniek on her podcast, Cake on Tuesday: The Leadership Blueprint, to share the heart and hustle behind Wish Wear Accessories—a brand rooted in love, advocacy, and the belief that every child deserves gear that works as hard as they do.

What started as a personal need for my son, Maddox, who lives with CTNNB1 syndrome, has grown into a movement to create adaptive accessories that are not only functional and accessible, but fun, comfortable, and thoughtfully designed.

I’m beyond honored to share that Wish Wear Accessories was recently featured in a local Utah newspaper! 🙌 This article gave me the opportunity to open up about the heart and hustle behind the brand, my journey as a rare disease mom, and how love, necessity, and creativity collided to spark something truly meaningful.

In the piece, I share:

• The why behind Wish Wear Accessories and what inspired me to create fun, functional, and inclusive gear for kids with disabilities

• My personal journey as Maddox’s mom and how navigating CTNNB1 syndrome reshaped my path

• The mindset tools, books, and resources that help me lead with heart, stay grounded, and show up in both life and business

💙 Advocating with Purpose: Volunteering with CTNNB1 Connect and Cure at Global Genes 💛

I had the incredible opportunity to represent CTNNB1 Connect and Cure at the Global Genes Rare Disease Summit, volunteering at our booth to share stories, build connections, and raise awareness for a cause close to my heart. As a rare disease mom and founder of Wish Wear Accessories, supporting the CTNNB1 community isn’t just part of what I do—it’s who I am.

Standing at the booth surrounded by passionate advocates, researchers, and families from around the world, I was reminded of the power of visibility and community. Every conversation was a chance to spark understanding, offer hope, and help others see the magic in our mission: accelerating a cure for CTNNB1 Syndrome while uplifting the incredible kids and families affected by it.

I had the honor of joining Nathan C on The Glow Up podcast to share the story behind Wish Wear Accessories, and how my journey as a rare disease mom—and a former tech industry professional—led me to create solutions that are helping families thrive.

In this episode, we dive into the heart of Wish Wear: why I started it, who it's for, and how I use community feedback and product design principles from my high-tech background to develop adaptive accessories that truly make life easier (and more fun!) for kids with disabilities.